There has been so many things going on (emotional and
feeling wise), that I feel like I need to get them out. I want to be able to
look back one day and read what I went through. In my last major pregnancy
update (which you can read about
here) I kind of went on a little rant
and I got lots of messages from people (and texts from my mother) all worried
about me. I guess just based on that post alone I did sound all mad and
depressed, but I PROMISE that these were just some thoughts and emotions that
Nick and I were going through for a small moment here and there. It’s normal
for anyone to be upset when told there is something wrong with your baby which
requires
major surgery, and if I wasn’t
thinking these thoughts and feeling those things, then I think that warrants
for more concern. So I am here to tell all my friends and family who I don’t
see face-to-face that often that I am truly okay! For the most part I feel I have
taken everything pretty darn well, and I am not sitting at home every night
crying my eyes out and I am in no way in a depressive state (which would be
totally normal given the circumstances). For those who know me, I am still my
upbeat, positive and optimistic self. I usually have a smile on my face, and
I’m still the outgoing and social person you all know me to be.
I do have emotional moments, but I’m usually listening to a
song and thinking of what’s to come. I get overwhelmed with the idea that I will
have to live in Edmonton for a minimum of 7 weeks, and that’s just if
everything goes smoothly. Nick will be with me when he can, and so will my mom,
but there is no place like home, so I’m not exactly stoked about the whole
situation. Family and friends will visit when they can, and I’m grateful that I
do have some family and friends right in Edmonton, but I’m scared that I’m
going to get very lonely and bored (I’m a social person – remember!). I’m sure watching
and learning to care for my daughter will keep me occupied, but it’s a long
time in general to be in a hospital (they’re not exciting places. I would know –
I work in one!).
I know it will all be worth it in the end, and in essence
this will be a small blip in the grand scheme of things. I just can’t wait for
the moment where Nick and I get to bundle our little girl up and bring her home
and enjoy that first few days as our own little family with no one else around
(I plan on not having any visitors for the first 24-48 hours that we’re home
after being surrounded consntlistey by doctors and nurses the first month of our baby’s
life).
Some other thoughts I’ve been having is I can’t believe how
much you can love someone that isn’t even here yet. Feeling her move around is
so surreal, and how I already love her so much and so unconditionally. I try to
picture what she’ll look like, what kind of personality she will possess, what’ll
it be like to hold her for the first time and how my life will never be the
same (in a good way). I just can’t wait!
The last few thoughts that have been crossing my mind have
to do with blessing, miracles and being realistic. I have received a few
comments on the diagnosis, so I just want to address and clarify a few things. I
would like to explain that while the diagnosis may change and alter a little as
we go along, there is no denying the fact that she has a serious congenital heart
defect that will require surgery. If there was any other hope of otherwise, I’m
sure the doctors would have told us. The doctors are not wrong and have not
made a mistake. I have ultrasounds every 2 weeks done by different techs and
viewed by a different specialist at one of the top diagnostic imaging centres
in Calgary at the Foothills Medical Centre – so it’s probably one of the best
in Western Canada.
The heart is almost completely formed by 7-8 weeks in utero,
so this will not resolve itself as she continues to develop inside me. The only
reason the diagnosis may change (and it probably will) is because they will be
able to see more as she grows. There is only so much they could see at 20 weeks through a uterus and amniotic
fluid!
The baby and heart are still so small, along with the arteries and vessels. Dr. Fruitman
was very clear that there won’t be a clear diagnosis until she is actually born
and they are able to do a direct ECHO on her without having to go through me.
They will not even make a surgery plan until she is born, have all the facts
(so multiple tests), and those results are presented to a bored of doctors in a
conference setting who will decide the best course for action.
I am a religious person and believe in God. I do believe in miracles,
but I’m also a realistic person. I think people forget that we live in an age
of miracles. Just look at how far modern medicine and technology have come. Had
this been even 30-40 years ago, we would be telling a very different story and
dealing with a much lower success rate. There are already blessings and miracles that
have occurred. We live in place with access to amazing healthcare and have
doctors with amazing talent available at our fingertips (the Stollery has one
of the top pediatric cardiology teams in the world!). Nick and I won’t have to
worry about a single medical bill, and we will not be put out on the street to pay
for surgery costs. We are told that our accommodation will be take care of as
we are eligible to stay at the Ronald McDonald house just blocks away from the hospital in Edmonton, and through volunteers,
will be feed dinner almost every night. It’s a miracle that they even detected
the heart defect. So many babies are born without their defect detected (even
here in Canada), and suffer worse consequences because of that. So while I am
not praying for a miracle that my baby will be born completely healthy (because though I am an optimistic person and amazing miracles can and do happen, there needs to be a balance of hope, expectations and realistic answers to our prayers), I am
praying for a miracle that the surgeon will be successful in performing the
required surgery. That his hands will be inspired to know what to do, and that
she will recover with little to no complications. Those are the miracles that I
believe are realistic to wish and pray for. No matter what happens - what is meant to be will be,
and we will make it though, no matter the outcome.
Much love,
Kierra