April is off to a fantastic start – and I really hope this is the beginning of a positive trend! I'm over the whole “when it rains – it pours” bit that we’ve been enduring for quite some time, and so I'm really looking forward to how the rest of this year will continue unfold.
Of course I’m currently referring to our mini ICU admission and fantastic bronchoscopy results that took place a few weeks ago – but I can’t emphasize enough how this procedure, and the results that followed were such a huge deal! Because my social media updates on Instagram and Facebook were pretty detailed and thorough, I’m going to save myself a little bit of time and just copy + paste them here – –
April 5, 2017
April 5, 2017
BRONCHOSCOPY RESULTS || so the bronchoscopy results are even better than I had anticipated (partially because I was too afraid to get my hopes up). We had the same Respirologist that did it last year – which was great for consistency purposes.
AND WE'RE DISCHARGED || by far our happiest ICU admission to date, and I'm seriously on c l o u d n i n e right now. While the medical team was busy rounding on other patients this morning, the nurse practitioner came in after talking to the Respirologist on the phone and stated that everything seemed to be in order and we could immediately take Evanna home.
We actually ended up running into the Respirologist out in the parkade (it's actually the second time this has happened lol), and he reiterated how happy he was with Evanna's bronchoscopy results + revealed that he had actually sprinted her off the ventilator for an extended amount of time while in the OR and she handled it just beautifully. We'll now be seen back in clinic in about 4 wks and look at making additional decreases (though I'm not sure whether it'll be in the form of vent settings decreases or play with the idea of sprints off the vent). My head is spinning at how fast this is all of a sudden going – but we've been warned in the past that once Evanna was "ready", the process would gain momentum and changes will start to happen on a more consistent basis.
/////// other little updates --
I've recently been able to encourage Evanna to walk along the couch ("furniture walking") if she wants to gain my attention. She's recently become a huge "mommy's girl" (Nick may be a little heartbroken over this new development lol), and so it's become a motivator for her to walk along the couch to get to me. Last Monday, nurse Carmen accidentally discovered that if you now hold Evanna under her armpits, she will take steps towards certain toys or her tablet. It's something Nick and I have tried to get her to do in the past, but I guess it wasn't something she was interested in doing until now.
These last two weeks of April have proven very busy which entailed a night out with friends this past Friday, another "trach mom night out" yesterday for me (we have a little local group of "trach moms" that try to get together about once a month for brunch or dinner), and Xoey's (our niece) baby blessing today! Evanna's 3rd birthday is next weekend, and my dad's 55th birthday the first weekend of May!
......AND before I forget, I was featured on another podcast (first podcast from 2016 is available here) back in February, and I've been meaning to link to it here on the blog for those who haven't had a chance to listen to it yet. CLICK HERE to hear our episode on Extraordinary Moms that I did in honor of CHD Awareness week where I talk about Evanna's journey and try my best to explain a "day in the life" of what it's like to be a "Trach and Vent" family!
xo The Irvine Family